October 27, 2009

Were Home!



This afternoon the doc came in and said that he had enough info and that he wanted us to go home. He said because of the h1n1 virus and all the folks at the hospital infected, it would be best to leave as h1n1 causes seizures. He took me back to the monitoring room and showed me a seizure on the EEG and explained that Abby is having focal seizures in the right frontal lobe which we knew, he mentioned that being that is is focal she is a candidate for surgery. He mentioned that very few are candidates so it is good that she is, but there are many risks with the surgery too. Death being the worst, insefolitus (sp?), stroke and many other things... He wants to get a PET-SCAN done soon to target the leision and if that does not do it, then they will have to open her up, put electroids on her brain, "refridgerate" her scull his words... and do another EEG with her head wrapped for 5-7 days to pinpoint the leasion. I don't know.... I didn't ask and didn't want to know. I am not there yet so I am not going to think about it. Are we going to go forward with the surgery... I am not sure.... He told me that even now with her seizing, with every seizure it could kill her instantly! Wow didn't know that one, still chewing on it, processing it kinda... just trying to put it outta my mind and remember God is in control....

She is doing well, sleeping now and I need to get her dinner ready, but wanted to update everyone.. Oh the genetics department did stop by and mentioned that they need to do blood work and some test.. just looking at her and knowing her past they think she has oh shoot just forgot the name.. something like "champ" syndrome - I know that is not right, so please don't quote me, will know more after the tests...

Thanks to everyone for your sweet prayers and comments... what true friends I have!

5 comments:

  1. WOW, That is a lot to think about! Good news and not so good news! I'll be praying for you and your family as you make these decisions and process this new information. Love, Hugs and Prayers!!!

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  2. Oh those sweet beautiful eyes. So glad you can get out of that germ factory and happy you didn't have to stay longer. Not sure that what you heard is so great. Please, oh please keep us update with news. Give her sweet hugs from Annabel.

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  3. Wow, that was fast! I was just catching up on the posts from when you checked in!

    I am sorry you are again faced with such scary stuff. I am praying for you and Abby. I know God will lead you through this, once again.

    Hugs and prayers, friend.

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  4. Lots to digest...my goodness. SO glad you did not have to stay as long as planned...and you were close to home. We will be praying for wisdom for you guys in the decisions ahead.

    Love to all of you.

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  5. Hi Tamra,

    I love your sweet little doll, she is so precious! I am sorry I have not been able to keep up with the hospital stay, but just got eveything read!..You have had a busy week, to say the least! What an enourmous decision! I am so sorry! But I know that the God you believe in will guide you to make the right choice Tamra!..So be still and listen...Joe and I pray for you daily, and keep you in our thoughts. I have not forgotten the sox's...I have just been swamped at work..I would so much rather be home and knitting for little Ab's!..:) Blessing oxoxox

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