I spoke to a dear neighbor today (who happens to be a nurse) and was telling her of Abby and what we are faced with. She encouraged me to call and get her scheduled for her pet-scan soon and so with that bit of encouragement I did.

Making this quick call somehow solidifies that it is all real and that is why I put have been putting it off. When I called the 1st time I was transferred and hung up on, good reason to think... "awe, maybe it's meant to be won't call back". The second time I got through and the person on the other end was very gruff, I wanted to say, "ya know I hear they are hiring at McDonald's if you don't care for your job all that much!" What has happened to customer service today? Don't they know that making these calls are difficult for parents?

Anyways, it seemed like an eternity as I waited for a date and time... thinking it would be within the next two weeks, she comes back with December 24th! Of course it's the only time slot available until next year! Are you kidding me, Christmas eve! I think I said without thinking, "your open on Christmas eve?"

Because of insurance and deductibles this will be paid for at 100% so it has to be done before the year ends... but on Christmas eve Lord? I love Christmas! It's my favorite part of the year, the last place I want to be is in the hospital waiting as my child lay unconscious on a cold stainless steal table having die shot in her while someone takes images of her brain!

This gal then proceeds to tell me she will have an EEG done before they do the pet-scan! Arugh, really? She has to go through that again too! We just got all that glue out of her hair!!!!! I am not excited about this at all, more reason to set my heart against doing it or that it should be done!

Why can't things go smoothly for once? Why couldn't I just make the call and talk to a very understanding sweet person, who would not mind answering all my curious questions that any parent would ask about this procedure? Why couldn't she have given me an appointment within the next month even? Why Christmas eve!!!! Why??

Can you tell I am a bit irritated right now? Its 4:30 and I am up rambling on about my frustration... thanks for listening...

Well... It's A Go! I finally published my photography website! check it out HERE and let me know your thoughts! I hope to add some music soon, still a little tweaking here and there, but all in all, whew... I am finished. YEAH ME! Check that one off the list!

Oh, I am also going back to school! Did I ever mention that? I am starting next week for my CNA. Medicaid will pay ME to take care of Abbs, but I have to get my CNA 1st. Since she qualifies... I get to go to school for free! A 6 week course with clinicals and I am done by Christmas! Phew.... yeah... still trying to keep busy!

We have not made a decision either way yet as far as surgery, but I am going to go through with the PET-SCAN before this year is up. Her deductible is all paid so it is covered at 100%. Must take advantage of that.

Thanks again for all your prayers! I do feel peace today about it.. thank you!

This afternoon the doc came in and said that he had enough info and that he wanted us to go home. He said because of the h1n1 virus and all the folks at the hospital infected, it would be best to leave as h1n1 causes seizures. He took me back to the monitoring room and showed me a seizure on the EEG and explained that Abby is having focal seizures in the right frontal lobe which we knew, he mentioned that being that is is focal she is a candidate for surgery. He mentioned that very few are candidates so it is good that she is, but there are many risks with the surgery too. Death being the worst, insefolitus (sp?), stroke and many other things... He wants to get a PET-SCAN done soon to target the leision and if that does not do it, then they will have to open her up, put electroids on her brain, "refridgerate" her scull his words... and do another EEG with her head wrapped for 5-7 days to pinpoint the leasion. I don't know.... I didn't ask and didn't want to know. I am not there yet so I am not going to think about it. Are we going to go forward with the surgery... I am not sure.... He told me that even now with her seizing, with every seizure it could kill her instantly! Wow didn't know that one, still chewing on it, processing it kinda... just trying to put it outta my mind and remember God is in control....

She is doing well, sleeping now and I need to get her dinner ready, but wanted to update everyone.. Oh the genetics department did stop by and mentioned that they need to do blood work and some test.. just looking at her and knowing her past they think she has oh shoot just forgot the name.. something like "champ" syndrome - I know that is not right, so please don't quote me, will know more after the tests...

Thanks to everyone for your sweet prayers and comments... what true friends I have!