October 4, 2009

Children's Hospital Appointment

First, thank you all to those that prayed for our appointment! Our appointment was great, the nurse practitioner and doctor were wonderful. I feel very good about them and giving it a go to leave Abby's neurology care in their hands. They will be making their own assessments from past MRI's and EEG and with new ones that she will have done at Children's. I was grateful for that, this way I know they want to see for themselves what is really going on, not just based off of Dr. Devinsky's findings. They did mention surgery, but as a last resort. First after the tests, they want to try the Kinetic Diet, then if that does not work there is something called the Vagal Nerve Stimulator. I don't know much about these options and need to look into the pro's and con's of both, but if anyone has had experience or knows anything I would love to hear!

The tests won't be set until sometime late October or late November possibly December! So I am thinking that next year we will start in a new direction.

Again, thank you very much for your prayers!

Tam

3 comments:

  1. Praying for you as you have yet more decisions to make. I hope to see you and Abbs soon.

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  2. Glad to hear that the appointment went well and that you feel comfortable with the doctors! Hope they are able to lessen Abby's seizures soon! Thanks for the update! HUGS!!!

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  3. Thanks for updating to let us know how your appt. went. Glad you are able to see a team here and not have to travel to NY. Praying they will be able to care for Abbers and that her seizures will become less and less each day. Love to you all....

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