Abigail was my 3rd pregnancy... All was completely perfect no complaints. A few months later a test revealed a 50% chance of down syndrome. We were given the option to terminate which was not an option for us.  March 8, 2005 Abigail Grace was introduced to our family weighing in at 8lbs and 12.4oz.  Little did we know as she was placed in my arms our lives would change forever!  Labeled "severely disabled" with an undiagnosed is how God choose to begin His work in our hearts and leave His finger print in our lives.  Her "labels" included multiple anomalies, dysmorphic features, mid palatal cleft, dysplastic heart valves, hypatomia, a coloboma in her right optic nerve, duplex kidney, retognathia, failure to thrive & sever developmental delays.  April 2005: She had an emergency surgery for G-Tube & Nissen Fundolopication.  Afterwards she developed pneumatosis, NEC and had a PIC line put in place. After genitics and endcronologists testing we were told she was blind in her right eye due to the coloboma. The Genetics department could not give us any answers....  May 2005: Her blood sugars levels dropped to a dangerous low of 43 and found she had dumping syndrome. She was rushed from one hospital to another where she had to be recessitated after a massive seizure.  A MRI revealed a bi-lateral CVA stroke with greater effect to her left side which left her paralyzed and fighting for her life.  September 2005: She was diagnosed with West Syndrome (infantile seizure disorder) which results in epilepsy at the age of two.   December 2006: We found Dr. Orrin Devinsky and flew to NY for an EEG which revealed her brain was in mass confusion. He administered Sabril and on 12/07/06 Abigail's had her last seizure.  April 2007: We repaired her mid-palatal cleft which created major breathing complications and she was sent to the PICU one again.  July 2007:  We flew to NY again for another EEG which revealed that Abigail's brain was now 90% functioning right.  She had some spiking in the right frontal lobe but Sabril continued to keep seizure activity under control.  January 2008: Abigail was diagnosed with Cerebral Palsy, and moderate hip dysphasia.  To date Her seizures have returned, the Sabril is no longer working.  May 2008: Flew to NY again for another EEG which revealed that Abigail brain is constantly being irritated in the right front lobe and that we should consider surgery to remove this diseased area causing the spiking and seizing.  PHEW.......  And yes God is still on His throne, He is still in control, Abigail's life is in His hands and we love and trust Him even more now than we did before we took one step on this journey He designed just for us!