April 24, 2009
Ups & Downs In Abby's Life
I am so excited to report that Abbs got her new Kid Walk yesterday! We were all so excited, that is me the kids and her therapists. Abby liked it and had fun just hanging out in it for about 25 min. and then that was enough.
Our sweet nurse, Rachel and I were excited to put her in it today, so after a bath we plopped her in and all the sudden these frustrating cries began. Then after about 7 min. she began to scream as if something was wrong or hurting her. I took her out and held her tight and she started to calm down but as I was taking her shoes and socks off this is what we saw!
Her little legs were so hot to the touch! We called our pediatrician and they said to come in right away. We thought that it could be seizure related due to her having 5 seizures in 3 hours time so I put a call into Devinsky's nurse. When we spoke she immediately told me to skip the pediatrician and go straight to the ER because it could be a virus and that could be causing the flux in seizures. I just took her to our doctor and he said she looked healthy and was glad to see the photo's of the redness, but that he was stumped and there was nothing he could do. He consulted with NY and they have upped her medication to try and stop the seizures, but that's it. Guess there is nothing to do for a virus, IF that is what she has.
Since we have been home Abby has been REALLY GRUMPY!!!! Rachel put her back in the walker and she was doing fine for about 3 min.
and then she started to fuss and cry. I looked at her legs and AGAIN these purple and orange spots were all over her legs!!! I am at a loss, the doctors don't know anything!! I have a call into her PT and our physician at the department of rehabilitation to see if they can give me any answers, now I just wait...
Has anyone else dealt with this with their child??? I don't know what to think and am so confused... Where does one go to get answers when the ones that are suposto know don't and your child can not communicate to you how they are feeling or what they are experiencing??? Ohhh how I don't like these ups and downs!!! I am blind walking through a maze!
Trust in the LORD.... in all things... The creator of the UNIVERSE can handle these little red, orange and purple legs... I just have to TRUST and deal with Miss. Grumpy!